Reviews
4.5
490 Reviews
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Jim Jacobs
· November 15, 2017
I have this and I also have this sent to my email as well ... I understand that it is nice to be in the group mentality that we are all in pain and this is so nice that we can deal with this together ...... I'm sorry but I also have fibromyalgia and PTSD and Depression ... sometimes the group hugs and lets all hurt together thingy is just not for everyone ... See More
Mike D'Amico
· December 27, 2017
Hi got shu of likewise saying my brane fron what I understand is not making enough dopo levo slim on pllls caled rate ra selling may b wrong were working good but now I'm older don't make a s much an...ymore so when ever it stops so do I I have a booster pill I take it helps a lot I know u will under stand these next things only if u havepdyour I the nabers house how low are the places Tostitos low u can't get up to let nuthin to d oto o hT off I feel pd coming on can I market to the dor am I talking to lowdo they here me. Thank godindon shake yet but it somthing stiffen up get a cramp u know how much it can heart need ice how do u get itmvves hive it to u on the rode u in trouble all to rest room umust walk even if u cat people would surprised how we can over power our brane after 12 yrs or more I not being a downer uno what I mean if u bony have it your lucky but u will never under Stan what to l opl ease don't tlsyou have omhing worse ire a lot cam to part w thy tell. How your b going to die can't rad it love u guys big monk dident make home made vino from zin fin delgrapes from ca lived in Waterbury ct got grapes fron Deleo bros4 yrs Maine s vex my friends and nabers and its to throng 4 me that piss me off hav a good day Can spell good bu don't take time hope don't mind y by See More
Caroline Cooley Cooper
· July 31, 2017
The PatientsLikeMe website is a great resource for tracking my treatment history! I'm not very good at that, but I don't have to forget which medicines I've taken or therapies I've tried. Also, I'm fa...irly new and already see how beneficial this will be in connecting with others. I'm especially excited about being involved in the #MoreThan campaign to promote keeping our identity focused on WHO we are and NOT our diagnosis. See More
Susan Page
· October 28, 2017
I like this site, and the new rollout is great. It fits well with a program we're looking at in Albuquerque to use language like: Acknowledge, Accept, Appreciate, Accomplish, in the place of negativ...e terms like stigma. Those of us who live with mental illness don't mind the "s" word, but we're finding the other members of our team really bothered by it. So we're trying to go in a different direction. Just like PatientsLikeMe. See More
Alysia Taylor
· December 6, 2017
A community led by people who truly care and want to make changes. I have met amazing people whose advice and stories have moved me and helped change my life. It is a platform to share my experien...ce and help others who deal with issues like me. See More
Sharon Crawford
· October 20, 2017
It was SO EASY , to answer a survey regarding my health , my meds and have a blood sample drawn. All in the name of helping someone else who may get the diagnosis of Lupus. Research is key in the dev...elopment of treatment and maybe a cure ! See More
Kat Hammond Dodson
· June 23, 2017
As long as I found this page, and doing my profile, I find it to be very educating.I know there are many ppl dealing with all kinds of conditions & finding them & sharing your stories to someone who k...nows what you go thru is so soothing at least for me..I am new so I am so looking forward to a new beginning in my life by finding "Patients Like Me"........................... See More
Ronnell Burks
· December 29, 2017
As an Ambassador, here @PatientsLikeMe, I cannot have anything less than the gratitude this Forum has given me since my having joined immediately following the God sent radio announcement that not onl...y opened my eyes but is a blessing in disguise. From text/messaging to an entire aura of choices there has not been anything more awakening and enlightening. In lieu of my own diagnosis, life as I know it still goes on without a beat and today I am onboard completely and non-discreetly with "giving back freely, as it has been so freely given to me!"

Yours, Now and Evermore,
@Ronnell0053, Ambassador@PatientsLikeMe....
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Mary Elise Arnold
· September 11, 2017
I don't have a problem at all with Patients Like Me using my info for research. How else can they help? They've helped me making it easy to use my logs at the doctors, keep a cycle and med history, mo...tivate people, get encouraged, and maybe even become a PLM advocate myself. See More
Bronwyn Goss
· November 4, 2017
Just that I am not alone with my condition. But my condition makes me alone.It is too hard to complete tasks. People don't care and can be impatient and nasty with me. I look fine ,therefore there is ...nothing wrong with me. It SUCKS! See More
Frances Turton
· December 2, 2017
I've been a member for a few years now. I find the tracking device for what treatments, medication etc brilliant. You can also track how your pain differs and how it affects your mood, sleep, etc. ...I am also on a couple of UK forums so I found keeping track of their forum section as well just a step too far so unfortunately that is one section I don't really participate in.You can also donate your data which helps them understand the issues a large group of people go through with a certain illness which helps them for research purposes. See More
Diana Poindexter-Huseby
· October 30, 2017
I'm just confused. I have fibromyalgia, I have had it for 40 years. I don't want a bunch of emails nor to I want to be part of anymore studies. I see all kinds of people here with different things,... how does this help me? I run a support group and if I can't understand this I'm not going to send anyone to this site. See More
Carrie Pizzalato
· August 25, 2017
I LOVE this community! Tons of ways to connect with others about many different conditions, opportunities for your input and opinions to make a difference, and a great way to follow your progress ove...r long and short periods of time. I got free genetic testing with this site AND a $200 Amazon gift card for doing a facetime interview with a researcher! Great site with great opportunities. See More
Christina Turner
· November 4, 2017
My councilor at the VA hospital recommended this site to me. I found stories that related to me. I was in Iraq and suffer from MST PTSD Major depression and night terrors. In a way I thought I was ...alone but after watching some of the videos I don't feel so alone any more. See More
Stacie Kendrick Mullins Drake
· October 4, 2017
I love being a member and the knowledge I have gotten
To meet others who have advice and to help others get through hard times. Lupus plus other Autoimmune diseases they are hard and painful on the bo...dy but I try not to let the disease run my life I run my life. Really love this page Thankful I found it.. See More
Eric Tarleton
· August 16, 2017
I was hoping to get something out of it. Have only been on this site for 24 hours or more and was hoping for some input from military vets that have PTSD like me. But I guess that no one wants to say ...anything to me. See More
Jayde Dow Johnson
· August 2, 2017
I have been with Patients like me for many years now and have found it extremely helpful to see where things are at with my health and pain issues. It is helpful and I would recommend it �
John A. Farmer
· November 14, 2017
At first I was not sure about PLM, but after a while I became more comfortable. These pages are used for research. I actually have gotten a lot out of PLM, and am grateful for the people who reached out to me.
BJ Canaway
· September 7, 2017
I've been a member of PLM for a year. The social community has been an amazing support. We learn from one another, share the best and the worst and have formed lasting relationships with folks from al...l over the world. The groups have gotten each other through some very dark days. I truly appreciate the family I've formed at PLM See More
Cat Minadeo
· October 13, 2017
I discovered PatientsLikeMe when I was first diagnosed! It helped me to understand my disease. Then through PatientsLikeMe I was able to participate with a patientcentric webinar with the FDA regard...ing my condition. Now I’ve recently joined DigitalMe to hopefully, possibly help find not only the cause to my disease but who knows. Maybe it can lead to better treatments or even better a cure! See More
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Videos
Why I'm #MoreThan My Condition
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Meet Hetlena and hear how she is #MoreThan lupus
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"I am not my illness. I have been chronically ill almost my whole life. I have to live day by day. I can't think of the future in the same way most people do. I have to live in the now. I have to fight to even function. But even with it all I am not my illness, disease and disorders." - @nentimaybe #MoreThan
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Posts

Stories showing the importance of second opinions have been popping up in the media and on PatientsLikeMe. Check out the recent news headlines, hear a remarkable story of a PatientsLikeMe member who received a life-saving lung transplant after getting a second (and third) opinion, and share your own experience of piecing together your health puzzle: http://ms.spr.ly/6187rL87l

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Did you hear PatientsLikeMe mentioned on WBUR? Mark Stevenson, author of “We Do Things Differently: The Outsiders Rebooting Our World” shares how PatientsLikeMe became a network where patients come first. Listen here: http://ms.spr.ly/6186rL8fe

From healthcare to food production to renewable energy, how innovators are shaking up the status quo to change the world.
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Posts

Simple Wins: The little things that keep us going.

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See how PatientsLikeMe members rate the efficacy of medical marijuana compared with prescription drugs: http://ms.spr.ly/6185rIF1b

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"I was interested in what might happen to me."

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“It just makes sense to give back.” See how PatientsLikeMe employees volunteered their time this year: http://ms.spr.ly/6182rICme

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This week on #PLMPets: Winston and Peaches! "My cats help me because they are my rock. They offer me unconditional love like nothing I've ever felt before." - PatientsLikeMe member living with bipolar and PTSD.

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"I thought I knew everything there was to know about my diagnosis and care.” PatientsLikeMe member Liz shares her experience with OpenNotes, a movement to give patients easy access to their providers’ notes: http://ms.spr.ly/6184rI4HC

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Simple Wins: The little things that keep us going. Add yours in the comments below!

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Did you know that 64% of people say they experience the holiday blues? Check out these 6 self-care tips for mental and physical health: http://ms.spr.ly/6181rIxhb

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9 mental health podcasts worth listening to: http://ms.spr.ly/6180rI29n

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Happy Holidays from PatientsLikeMe!

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To all the newbies and longtime members, thank you for making the PatientsLikeMe community what it is!

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"My dog's name is Neerah, which means bringer of light. She helps me get out of bed and be productive because I have to take care of her." - PatientsLikeMe member Kristan living with depression. #PLMPets

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