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That 🤨 feel when the medication you’ve been taking for YEARS suddenly has a new ominous warning label.

#suspiciousaf #moodswings #swingaway #medication #chronicillness #systemiclupus #lupus #immunosuppressed #warninglabel #spoonie #spoonielife

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Flashback to the glorious Xmas Eve when I discovered the joys of having a kitchen helper-brain.

I hope y’all have all the mad coping skillz you need to make whatever holiday you celebrate a fabulous one!

#brainfog #dryerase #copingskills #baking #christmaseve #chronicillness #lupus #systemiclupuserythematosus #systemiclupus #migraine #cognitivedysfunction #medication #mtx #spoonie #spoonielife

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Videos
Boomer: “Whatcha doin’?” Me: “Trying to take a nap.” Boomer: “Uh-huh. Pet me.” Me: “What? No, I need a nap.” B: “Petting me will help you nap.” Me: “That’s the actual opposite of helping. Stop.” B: “Mmkay ............. Pet me.” • #selfcaresquad #Boomer #notgoodatherjob #nap #naptime #chronicfatigue #mandatorynaptime #lupus #chronicillness #autoimmunedisease #spoonie #spoonielife
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Our entire plan for the day. ~ Because when lupus takes a spin at the Wheel O’ Symptoms and lands on Pleurisy: It Kinda Hurts To Breathe NBD, having a lap full of cuddly purrs helps me remember to sit tf down and get the daggum rest I need. ~ #SelfcareSquad #Dragon #purr #purrbox #lupus #chronicillness #pleurisy #breathinghurts #respiratoryproblems #autoimmune #autoimmunedisease #spoonie #spoonielife #kitty #catsofinstagram
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me: *tired and cranky and hateful because I need to sit the hell down and rest but I won't because pride* cat: "Let's play video games and snuggle!" me: 😡 ... 😠 ... 😒 ... fine. cat:
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Posts

me @ my bed: 🎵All I want for Christmas is yoooouuuuu 🎶

@beckybarnicomics gets it, y’all

#sotired #nevernottired #chronicfatigue #chronicillness #lupus #systemiclupus #autoimmune #autoimmunedisease #fatigue #spoonie #spoonies #spoonielife

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BOOM. THIS. We do not all have the same spoons.

Whether you’re dealing with mental health, chronic physical health, bit of both, whatever, just FYI, I hear ya, I see ya, and I’m right there with ya.

Deep breath, at our own pace, let’s get the daggum peanut butter.

What It's Like To Hear "Just Get Better"

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The Chronic Curmudgeon added a new photo.

It took a long (long, long) time for the feline Squad members to admit that D’Argo was allowed upstairs, let alone accept him into the VIP Nap Sunbeam.

#selfcaresquad #Dargo #PrincessNeko #Boomer #naptime #nap #sunbeam #pibble #pibblemix #pitbullsofinstagram #catsofinstagram #kitty #gingercat

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Happy Thanksgiving! 🍽 🥧
Today, I’m thankful for the ~GLORIOUS~ circulation to my fingertips (lookit how pink!) and to @mariesaba for posting a simple easy-to-follow tutorial that helped me *TRIUMPHANTLY*CONQUER* my terror of pie crust.

#omnomnom #raynaudssyndrome #raynauds #chronicillness #lupus #autoimmunedisease #spoonie #spoonielife #thanksgiving #pie #pumpkinpie #minipie

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Boomer: “Whatcha doin’?”
Me: “Trying to take a nap.”
Boomer: “Uh-huh. Pet me.”
Me: “What? No, I need a nap.”
B: “Petting me will help you nap.”...
Me: “That’s the actual opposite of helping. Stop.”
B: “Mmkay ............. Pet me.”

#selfcaresquad #Boomer #notgoodatherjob #nap #naptime #chronicfatigue #mandatorynaptime #lupus #chronicillness #autoimmunedisease #spoonie #spoonielife

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I’ll take “All Of The Above” for $200, Alex.

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LupusChick.com - Autoimmune Health and Support Community

Great infographic! Do you have any of these symptoms?

Lots of walking? Germs? Crush of random humanity? Harsh lighting? Cosmetics kiosk trolls shouting about how tired I look? SiGn Me ThE hEcK uP.

Instagram post by Hannah Hillam • Nov 11, 2017 at 7:17am UTC
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Our entire plan for the day.
~
Because when lupus takes a spin at the Wheel O’ Symptoms and lands on Pleurisy: It Kinda Hurts To Breathe NBD, having a lap full of cuddly purrs helps me remember to sit tf down and get the daggum rest I need.
~
#SelfcareSquad #Dragon #purr #purrbox #lupus #chronicillness #pleurisy #breathinghurts #respiratoryproblems #autoimmune #autoimmunedisease #spoonie #spoonielife #kitty #catsofinstagram

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The Chronic Curmudgeon added a new photo.

FUN FACT: When the combination of poor circulation and constant handwashing makes painful cracks in the skin that no amount of lotion can fix, so you have to wrap your fingertips in band-aids ... you can’t open the produce bags at the grocery store.
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It’s a very specific fact.
~
#raynauds #compromisedimmunesystem #immunocompromised #fingertips #lupus #systemiclupus #chronicillness #dryskin #spoonie #spoonielife #spoonieproblems

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When you have to add the basic tasks of living to your to-do list because you know the brain fog will roll in and you’ll forget how to human if you don’t, and you’ll end up crumpled in an overexhausted and underbloodsugared heap with nothing accomplished by noon.
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I’m not saying this dry-erase board has saved my life more than once, but I’m not NOT saying that.
~
#brainfog #cognitivedysfunction #fatigue #chronicfatigue #chronicillness #lupus #systemiclupus #autoimmune #autoimmunedisease #spoonie #spoonielife #todolist #dryerase

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That’s right, folks! Get yourself a chronic illness that traps you indoors with lots of free time and access to all the cake decorating tutorial videos on youtube, and you, _too_ can make your bestie a Princess Panda Birfday Cake!
~
#unsupervisedinthekitchen #panda #cake #cakedecorating #birthdaycake #princess #chronicillness #lupus #systemiclupus #autoimmune #autoimmunedisease #spoonie #spoonielife

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Raynaud’s is a common side-condition that latches on to lupus like a frozen barnacle. Which can be SUPER FUN as the cold weather months creep up on us. Time to double-check my purse stash of chemical handwarmers and make sure every jacket has a pair of gloves in the pocket.

Stay toasty, my friends.

The cold literally does bother me anyway.
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