LupusChick’s Spotlight On series began about 3 years ago. We highlight men and women who are dealing with a wide range of illnesses, and we felt it was important to tell individual stories because of how different they are. Our hope is you connect to one (or more) stories! This Spotlight On story was completed by LC writer, Maria Mongiardo.
Bay was just diagnosed in September with Lupus after suffering with Lupus-related symptoms for nearly seven years. She currently lives in Poland and has a large amount of support from family and friends.
How were you diagnosed with Lupus?
My symptoms began almost seven years ago. I went from one specialist to another looking for answers. I had persistent daily headaches, fatigue and general lethargy, I was so sensitive to heat of the sun. Fifteen minutes of being out in the afternoon can ruin my whole day. My muscles and joints ache without a reason from time to time, no diet or lifestyle change ever provided a long lasting relief.
What medications are you currently on?
My rheumatologist put me on Methylprednisone 8mg.
Did you know what Lupus was when you were diagnosed?
I had heard of it only when I started going to an immunologist and got reference to a rheumatologist. But it was confirmed unfortunately 6 months later, after I had done all the necessary tests.
How did you explain Lupus to your friends and family?
I told them that I finally found the reason for my symptoms. They know them by heart since I am either suffering or complaining. I said that it is an autoimmune disease that is dangerous but can be controlled by medication. They all encouraged me to start the treatment immediately and made sure I stayed positive.
Lupus – Looking Forward
What advice would you give to other Lupus Chicks?
I would tell them to hang in there, never lose hope. Avoid stressors and triggers and to take care of themselves. Nutrition and a healthy lifestyle make a huge difference. Staying hydrated helped a lot with my symptoms.
What do you hope someone understands from reading your story?
Just like anyone dealing with a chronic illness, I hope for a cure, or some kind of side-effect-free management. If you are a Lupus patient or have a loved one suffering from this illness, please learn about it, and spread awareness, people with Lupus have the majority of their psychological symptoms due to the ignorance and disregard of their non-visible symptoms such as tiredness and body aches, being called “lazy.”
Lupus is not just some skin disease, and while taking the medications may prevent some serious prognosis, it does not stop us from feeling low every day, and occasionally being in pain for the whole day. Please be compassionate, spread love, and never lose faith.
We agree with Bay’s last statement!
What is your Lupus story? Let us know in the comments.
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